Tuesday, December 11, 2012

This Matters

As a school counselor, I see all kinds of need everyday.  A lot of it is the kind of need that makes your heart ache, makes you uncomfortable, and wonder what a child's home life is like. The families of my students work hard, everyday. Many mothers work 12 hour days and fathers work 12 hour nights. This is how they survive and attempt to grasp the "American Dream". They take pride in what they do and the homes they keep, but sometimes, they can't catch a break.
 
This organization is just plain essential to what I do. Because of Neediest Kids, I've been able to give kids coats, eye exams and glasses, food, and medical services. People talk about creating change and helping those in need theoretically, but this organization feels the urgency that I do and gives families a hand when they need it. Last night, I brought a student to get new glasses and he was over the moon, all because of the opportunity that this organization (in collaboration with Bridge To Success)  provided.
 
If you're considering a donation this time of year, please consider Neediest Kids. They practice what they preach and are a god send to the students I know.

Thursday, December 6, 2012

Rosi-er Rosebud

 
As you can see, the rosebud is feeling better.
While she's still not happy about drinking with her new bottle, she's in good spirits when we're not trying to feed her or make her nap with arm restraints. Go figure.
One thing is certain: we are as eager for her to get back to regular eating and sleeping as she is.
 Tucker's been home with M for the past few days. He had to work yesterday afternoon, so I left work early and Margot and I played for a few hours before we headed to the airport to pick up Sassy.



"I'm almost 1! Can you believe it?!"

Monday, December 3, 2012

Fathers & Daughters

We had Sunday brunch at home (the best kind) with Ty, Liz, Emma, and Cameron. While the coffee was brewing and egg sandwiches were being assembled, I snapped this pic of the dads and their daughters. I love how alert Margot is! We gave her a break from her super hero arms for a bit and she seemed to like that a lot.

Everyday, she's eating a little more and sleeping a little better.  More to come...

Sunday, December 2, 2012

Bravest Patient

Friday was the big day. The surgery went well and Margot is getting better and better by the day. It will be a few weeks until things are really "normal", yet we are in the midst of redefining normal for her anyway. We're thankful that the toughest day is over and we can look forward to M making progress everyday. 
In retrospect, I feel a little like I've been holding my breath in anticipation of this day. Tucker and I both can breathe a little easier now that this is behind us.

We arrived at Children's at 7am, before all the hustle and bustle. It was a welcome departure from the chaos that we've found in past visits.
 Itty bitty Margot next to the giant Christmas tree. It was such a cute juxtaposition; I couldn't help myself:)
At the surgical care center, only parents were allowed to wait. It was hard not to look around and wonder why these other sweet kiddos were there, too.
After we checked in, we had to wait, and wait...
and wait. Finally, around 10:30am, the surgical team came and got Margot. Deliriously tired and hungry, she went easily into the arms of the assisting doctor whose goatee absolutely blew her mind. Tucker and I were chopped liver (and happy to be so) and relieved that the "hand off" had gone so smoothly.
During the surgery, we tracked her progress by following her status on the board below. When the surgery was complete, Dr. Oh came out into the waiting room and told us everything had gone well. 
Seeing her in Recovery as she slowly woke up and the anesthesia wore off was probably the hardest part. She and I sat in this chair together, with the blanket hiding all the wires connected to her, all afternoon.


We were placed in a large double room which we had all to ourselves. Margot slept briefly in her crib and the rest of the time she slept on Tucker or me. In the room was also a reclining chair and a couch that, when fully pulled out, was narrower than a twin bed. We got the distinct feeling that the hospital didn't want us getting too comfortable. Well played, Children's Hospital.


The Vecta was an important part of maintaining Margot and our sanity at the hospital. It's this amazing machine that has water flowing, bubbles, floating balls, lights, and a projector showing fish swimming through reefs. 
Margot was captivated by it and it helped her to not notice her pain for a little while. A very sweet nurse named Theresa had the Vecta brought to our room for us to use whenever we needed.  Kudos to whoever invented this machine.

 Our nurse was Hannah who grew up and went to college in Maine. It was fitting that Margot wore her lobster hoodie to go home.

 While the arm restraints don't quite make our list of favorite baby gadgets, they do make our little cherub look like a super hero. Super Margot!
 Tucker with Margot, giving her new/temporary bottle a try as she cheers herself on.
There were so many people who made/are making this situation easier on Margot and us. All those blankets we were given when M was born have turned into sources of comfort and soft, tactile distraction for Margot. All the emails, texts, and phone calls have lifted Tucker and my spirits, allowing us to take better care of Margot. The visits and deliveries have been happy diversions from a stressful circumstance.

Every thought and prayer has made a difference. Thank you everyone! 

Thursday, November 29, 2012

Prayers For MLM

Though I'm not one to typically share something like this, I thought I'd share what I'm currently praying for as it relates to Margot's palate surgery. As we prepare for the big day, we ask for your thoughts and prayers. Here are mine:

1. I pray that Margot won't be scared and that she feels her mom and dad's presence even though we won't be in the room with her.

2. I pray that her surgeon and anesthesiologist are well prepared for the surgery and take the proper time to understand Margot's case so that the procedure is done as well as possible.

3. I pray that she sleeps a lot after the surgery so as to allow her body to heal and so that she doesn't remember the pain.

4. I pray that there are no surprises and no complications. **This is an important one, for some reason.

5. I pray that she doesn't sneeze during her recovery because I imagine that it would really hurt!

6. I pray that she adjusts to her temporary feeding style and arm restraints quickly.

7. I pray for strength for Margot, Tucker, and me.

8. I pray that those around us are gracious when we aren't ourselves, or fall short of our commitments while we juggle day-to-day tasks and Margot's recovery.

9. I pray that once she's healed, Margot is the same sweet, bubbly, and curious girl we know now.

10. I pray that when she's older and she understands that she was born with this, that she's compassionate to others who are sick or in need of treatment. I also pray that she loves herself, flaws and all.


Margot's surgery is scheduled for tomorrow and we should be in the hospital a few days.

Tuesday, November 27, 2012

11 Months

Today, Margot is 11 months and 11 days old. 
I cannot believe how big our baby girl is!
I tried to take the pics the way I have in months past, but Miss Wigglefritz had other plans.
So I took these pics...

Standing in her chair...so bold!

Margot had a bad fever yesterday but seems to be back to herself today. She and I stayed home to make sure she got lots of rest and also to avoid sharing her germs with her buddies Hazel and Anushka at daycare. In Margot's world, there's little that some snuggling and a nap can't fix. 

We love her so much!

Monday, November 26, 2012

The Art of The Early Bird Special

While we were in Boston, we visited with the Larmons and the Diases on Saturday night. Our three families of three had dinner chez Dias on Partridge Street in Somerville. With baby bedtimes cramping our style just a bit these days, we made it an early night.

As you can see below, Margot had a blast! Actually, our poor girl was beyond exhausted and caught up on some shut eye in Graham's crib shortly after this pic was taken. That Dias boy is such a gentleman...
Graham, Margot, Ollie
Tucker, Margot, and Matt
Margot snuggling with Christy.

I fell in love with Christy and Matt's house. They bought it as a "fixer-upper" and have transformed every inch of it. It's warm and full of character. They described their neighborhood as being like the Wonder Years. I absolutely loved it!

 Graham (who somewhere got the nickname Graham-bo) was a man on the move, just like he was here with Tucker.

Ollie, Braden, and Graham reading a riveting novel. 
With Larmon 2.0 on the way, I'm thinking Braden may have been taking notes on how to wrangle two boys at once.

More reading, this time with Matt.

Three mamas with three blue-eyed munchkins.

By about 7:30, we'd had play time with the kids, a full dinner and dessert, and were on our way. 

Here's to the early bird special!